Posts tagged Pain

Life

February, March and April are my worst months.  My middle finger on my left hand is now becoming deformed due to the joint fusion.  Every morning I can not straighten it out.  My rheumatologist is unable to keep my pain under control so now I have been referred to a pain specialist.  Maybe this can be a good thing.  Maybe they will give me the pain meds that actually work.  I don’t know how many times I have said that I am getting so tired of the pain…  I probably sound like a fucking record skipping over and over…

Insanity would best describe how I feel.  I know now, how others have to live with pain that are far worse then I.  Even then, I have problems dealing with my own situation and there are others far worse.  I can’t imagine how others worse then I deal with it when I feel so insane from it. I am writing now because I can not sleep.  The best thing you can do for insomnia is get up and do something.

I think I am going to file for short term disability through my work.  I can’t be there on time on top of missing at least one or two days every week.  I’ve talked with my boss and now trying to schedule a meeting with the President to see what I can do.  This is something I have been trying to avoid.  I keep thinking that I might get better and some days it feels like that but then I am reminded that any one with this disease has never gone into remission, my immune system goes crazy and then I have a flare up.  I am so tired so so so so tired of the same shit over and over and over etc…  It never fucking ends and it literally never will.

Author Daniel Clark on the Front Porch

Author Daniel Clark

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Nurses

I know many of you have heard or read some like these…but here are some I haven’t seen before.  The crazy thing about this list is that my wife has mentioned or told a story regarding most of every thing listed here.  The fact that there is over 170 of them and someone not in the profession can relate or know of a bunch of these is even better.

  1. The front of you scrubs read: ‘Nurses…here to save your ass, not kiss it!’
  2. You occasionally park in the space with the ‘Physicians Only’ sign, and knock it over.
  3. You’ve ever told a patient to ‘move toward the light.’
  4. You believe that all the patient needs is some vitamin A (ativan)
  5. You’ve ever run out of linens, syringes, IV fluid, meds, and patience all at the same time
  6. You ever felt like a Gastroenterologist… because you work with a##holes
  7. It IS as BAD as you think, and the patients ARE out to get you
  8. You ever told a patient he didn’t need to be dead to donate an organ
  9. You feel that earth is the insane asylum for the universe
  10. You believe some patients are alive only because it’s illegal to kill them
  11. In a critical situation, the most highly qualified clinician will offer the most advice and the least support.
  12. You do the “only-27-more-minutes-of-the-shift-from-hell happy dance”
  13. When you need the money, your shift is cancelled; ….when you have a weekend planned, you have to do overtime.
  14. You believe sick people don’t $itch
  15. You believe the more equipment you see on a nurses belt, the newer they are.
  16. You believe when dealing with patients, supervisors, or citizens, if it felt good saying it, it was the wrong thing to say.
  17. You believe If the child is quiet, be scared.
  18. You always follow the rules, but be wise enough to forget them sometimes.
  19. You believe if the patient vomits in the ED, try to hold their head to the side of the stretcher with the disposable equipment, not the stuff you have to clean.
  20. You believe any family member who is more drunk (or more stupid) than the patient, is the real problem.
  21. You can’t cure stupid.
  22. You believe if it’s wet and sticky and not yours, leave it alone!
  23. You believe that idiots that get into car crashes are the first ones to complain how bumpy the ambulance ride is.
  24. You believe when a patient vomits, be sure to aim it at the family members who wouldn’t back up.
  25. You never trust crash cart, drug box or airway bag to be fully stocked. More >
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Left Hand Lock Up

My left hand keeps locking up.  Every morning I wake up to my left hand curled up almost into a fist and I am unable to straighten it out at all.  If I try the pain is so bad that it prevents me from even moving any of my fingers.  It takes about 40Mg’s of Oxycontin, one Mobic, 30 Mg’s of Prednisone and maybe some Vicodin for break through pain.  Then I have to wait about an hour for it all to kick in.  I have to figure something out at night to keep my and in to keep it straight and not curl up…

Author Daniel Clark on the Front Porch

Author Daniel Clark

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Endoscopy

This 18th, I have to go and get a endoscopy done.  They are looking for anything abnormal and ulcers.  I lost 20 pounds in about 2 weeks.  I was down to 176 pounds.  Reason was I quit eating since everything I ate and or drank at any time felt like it was going to come back up.  The sickness has lasted about a month so far until I started taking the stomach medicine.

The G.I. Doctor said he thinks its ulcers but if they are they don’t feel like normal ulcers from when I had them before.  Ulcers were painful when you got hungry and went away after you ate.  I am having the exact opposite now.  When I eat or drink I get sick, almost to the point of throwing up.  They still think its ulcers though…  We’ll see (literally) I guess on the 18Th.

Author Daniel Clark on the Front Porch

Author Daniel Clark

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Age before Technology

TO ALL THE KIDS WHO SURVIVED the 1930’s 40’s, 50’s, 60’s and 70’s!

First, we survived being born to mothers who smoked and or drank while they carried us.

They took aspirin, ate blue cheese dressing, tuna from a can, and didn’t get tested for diabetes.

Then after that trauma, our baby cribs were covered with bright colored lead-based paints.

We had no childproof lids on medicine bottles, doors or cabinets and when we rode our bikes, we had no helmets, not to mention, the risks we took hitch-hiking.

As children, we would ride in cars with no seat belts or air bags.

Riding in the back of a pick up on a warm day was always a special treat.

We drank water from the garden hose and NOT from a bottle.

We shared one soft drink with four friends, from one bottle and NO ONE actually died from this.

We ate cupcakes, white bread and real butter and drank soda pop with sugar in it, but we weren’t overweight because

WE WERE ALWAYS OUTSIDE PLAYING!

We would leave home in the morning and play all day, as long as we were back when the street lights came on.

No one was able to reach us all day. And we were O.K.

We would spend hours building our go-carts out of scraps and then ride down the hill, only to find out we forgot the brakes. After running into the bushes a few times, we learned to solve the problem.

We did not have Playstations, Nintendo’s, X-boxes, no video games at all, no 99 channels on cable, no video tape movies, no surround sound, no cell phones, no personal computers, no Internet or Internet chat rooms……….WE HAD FRIENDS and we went outside and found them!

We fell out of trees, got cut, broke bones and teeth and there were no lawsuits from these accidents.

We ate worms and mud pies made from dirt, and the worms did not live in us forever.

We were given BB guns for our 10th birthdays, made up games with sticks and tennis balls and although we were told it would happen, we did not put out very many eyes.

We rode bikes or walked to a friend’s house and knocked on the door or rang the bell, or just walked in and talked to them!

Little League had tryouts and not everyone made the team. Those who didn’t had to learn to deal with disappointment. Imagine that!!

The idea of a parent bailing us out if we broke the law was unheard of. They actually sided with the law!

This generation has produced some of the best risk-takers, problem solvers and inventors ever!

The past 50 years have been an explosion of innovation and new ideas.

We had freedom, failure, success and responsibility, and we learned HOW TO DEAL WITH IT ALL!

And YOU are one of them!  CONGRATULATIONS!

You might want to share this with others who have had the luck to grow up as kids, before the lawyers and the government regulated our lives for our own good.

While you are at it, forward it to your kids so they will know how brave their parents were.

Publisher Unknown?

-Dan

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This Week…

Author Daniel Clark on the Front Porch

Author Daniel Clark

This past week has been bad.  Every morning my hands have been the worst in terms of mobility.  I can barely put on my on damn socks they hurt so bad.  Once I sit down, its a battle to get back up under my own power due to my knees and ankles.  The pain meds I have been taking are not working as well as they normally should since I have been taking them for years now and my body has built up an immunity to them so now I have to take double the amount I would normally take to get the same effect to take the edge off.  My next appointment I am going to try and get different pain meds and alternate between the two so that they may work better.  Also going to try and get my doctor to up the corticosteroids.  I can’t believe I am still sane after all I have been through so far…

-Dan

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Never ends…

My pain never ends.  This last weekend, both Saturday and Sunday mornings were horrible.  Both hands/fingers completely frozen.  Locked up to the point that I could not open my hands at all.  I would start to try and open them and then they would stick and pain shoots all the way up both arms.  My knee’s were also swollen.  If I sat down for more then 5 minutes, I would have serious trouble getting up to a standing position on my own.  The pain pills (OxyContin) is not working like it should any more.  I figure my body has built up an immunity to it making it ineffective.  I think I am going to try and have my doctor change my medications to see if that helps any (and if he even does it).  I have so much shit to do yet I can’t do it in this condition.  I am so sick of feeling like this that it is driving me insane.  Fucking INSANE!

-Dan

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Fucking hurting today…

Man am I fucking hurting today.  Both hands are swollen and its hard to type.  Today, the first real snow fell.  Probably why I hurt so bad.  Theres not enough OxyContin I can take to rid this pain (trust me, I tried).  I am sure it helps, not sure I want to imagine myself with out it.  I have enough corti-steriods in me to make Lou Ferrigno seem like a baby.  I no longer have the good insurance that covers Enbrel or the other $2200 a month script that would make my life easier.  Go figure.  I am back to basics including the sickning Methatrexate chemo drug that I am seriously consider taking again.

-Dan

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Daily Pain

No surprise, yet another painful day.  This time, my right arm from the elbow to the last joint in my finger are swollen and painful to move.  Don’t get me wrong, all my joints hurt, just others way more painful then the rest.  I am getting sick and tired of having to wake up like this.  It really sucks not able to move in the morning when you first wake up especially if you have to take a piss.  Standing up and taking a piss hurts my legs and arms to just stand there and seems like I have to stand there for ever to get done.  I take my pain meds immediately but they don’t kick in for about an hour after I take them.  So I sit or lay around in agony until they enter my system.  Once that is complete, I can continue to get ready for work.  I tell you, if it was not for Kim, I’d be dead and that no exaggeration.  Also if it wasn’t for the Prozac, I would be totally insane.  Every morning, the same bullshit, some days I just get so fucking pissed… but most of the time I can deal with it except those rare times it just gets to me.  This is one of those days.  I’m done venting now.

-Dan

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Pain

Every morning for the past few weeks, it has been very difficult to get mobile.  My doctor even gave me higher doses of pain meds.  I am back to the point where I can not put on my own socks with out being in a lot of pain due to my hands and ankles being so stiff and swollen.  I am no longer on Embrel and can not afford any of the new meds for arthritis.  I am just taking pain meds, anti-inflammatory meds and steroids along with Prozac for depression and pain.  The pain that I feel now is normally reserved for the winter months.

My morning Pain Rating is about 6 or 7 on a scale of 1 to 10.  Evening Pain is around 3 or 4 for the past few weeks.  I don’t see this getting any better.  This royally sucks.

-Dan

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