Its been 7 months, 3 weeks, 4 days, 17 hours, 21 minutes, 31 seconds ago so far since I last had a smoke!! This time I really quit.
-Danny
It has been a long time since I posted anything here. I finally found (or I should say my doctor) a medicine that actually works on controlling my A.S. and R.A. I am still on Morphine and Celebrex but Humira is the work horse that is keeping me mobile. I should be returning to work in January of 2011! No more showing up late or half days from being sick (fingers crossed). These are my worst months and so far, I am not that bad. I still hurt but nothing like it was before and during October. Things are looking good, lets hope it continues!
-Daniel
Well, I am now on short term disability for at least eight weeks now. My rheumatologist has prescribed me a new medicine to take instead of Embrel. I am not going to be taking Humira. Another biological medicine. I hate taking different meds as I don’t know how they will affect me until its to late. At least some good came out of my last visit as she also upped my Prednisone script. I am on ten milligrams a day now although I don’t think that little amount will do anything for me… we’ll see though…
Even though I am not working anymore for the time being, it does get boring at home now during the days. I’ll probably be on Facebook more now since I have nothing to do. I have to admit, its nice to be able to sleep in when I can (usually when not in pain). These last couple of months I have been out of my mind with pain in every joint. So bad that I couldn’t even play WII or the XBox cause my hands and fingers hurt so bad. I hope I have a positive reaction to this new drug. I have me fingers crossed. I’ll keep you posted as well.
-Daniel
Daniel,
disability,
Embrel,
Fingers,
Hands,
Medicine,
Pain,
prednisone,
rheumatologist,
Sleep,
WII My Morphine prescription was upped today. That’s a nice thing since now I don’t feel like I am abusing it. It should help in the mornings until I can get my Prednisone back. Since my Prednisone has been reduced to 5 Mg, is when my pain really shot up. I have a feeling though that I am not going to be able to get it back which is what I need to control both diseases.
-Daniel
I am sick and tired of being in pain. I feel like I am going insane. The thought of this never ending is making me insane…
-Daniel
I am still here and alive. It’s been awhile since I posted anything. To much bullshit going on but so far now its getting better (knocking on wood). I do believe I have found all the right Doctors (ones who actually care) and not one of them is from Cleveland Clinic!
I am going on my second month with Embrel but I have yet to feel any better. I have to wait at least three months for it to take full affect. I am hoping it works but I would have thought by now that I would be feeling better, not yet though. If it does not work by the third month I don’t know what my Rheumatologist’s next plan of attack will be?
-Daniel
Today (this morning) was with out a doubt the worst pain to date. I give it a 9 out of 10 on the pain scale. My ankles are the worst, then my hands. My knuckles are actually swelling up and causing my hands to look like I finally have rheumatoid arthritis. I wanted to cry like a bitch it hurt so bad. I went and had more blood work done and that was a pain (literally) having to walk through the hospital. I can’t imagine what it would be like with out my pain medicines. Right now, the pain meds knocked my pain down from a 9 to a 7. That does not seem like much but I am VERY great-full for even that minor bit of relief (since I know what the full affect of this disease feels like minus any pain meds)!
My pain rating today is about an 8 out of 10 (10 being the worst). After pain meds kick in (about an hour or two after taking them) I am at about a 5 which is tolerable / manageable. My hands are the worst today followed by my lower back left hip and my knee’s & ankles. Swelling in my hands prevent me from even putting my own socks on today. Using my cane heavily today. Nothing else to report except the pain hurts…
I am very sleepy today. Probably because I did not get to bed until around 1 or 2 AM in the morning. It is Stress Free Friday! As I mentioned in a previous post (SOMETIMES…) this is what you have to say. It’s almost 5PM. Waiting for quitting time. I think I am going to have some German Bombs this weekend. Ya, that’s it, gonna get drunk.
http:/www.despite.org/blog/2010/05/sometimes/
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